Why am I writing A blog? Well partly because of Cystinosis. However, I want this post to be about more than just Cystinosis. Its about all of me, my interests, my life and experiences including Cystinosis. There are very few people that see how Cystinosis affects my everyday life. Generally I keep a brave face and keep my self to my self. I don't want people to pity me, think I'm, wanting attention or to have special treatment. That's the last thing I want. I want to be the same as everybody else and I have found the best way to do that is to carry on like normal. However I do want to tell my story to anyone who is interested and I feel for you to be reading this post that you must have some sort of interest.
I have been thinking about writing a blog for a while now but I always chickened out because I'm not great at socialising and a little nervous especially knowing this is a completely public page. However, I'm better at writing things and after admiring a few of my friends new blogs, as you can tell, I have finally decided to give it a go.
So a little about me..... I just moved into a small house with my partner and adopted greyhound. I now work part time in a local Primary school (by local I mean less than 5 mins walk which much is better considering it used to take me 45 mins to walk to work). I was born with a rare medical condition called Cystinosis. ( I know you will probably have no idea what that is but if you click on the word Cystinosis it will take you to my what is Cystinosis page). I have an NVQ level 3 in child care which I studied at Wiltshire collage and also business and office skills
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My adopted Greyhound Gomez |
Food: Chicken, especially KFC! I also like fish especially when im not feeling good or too hot fish is really quick and light. My condition also makes me crave salt so I put salt on everything pretty much (except puddings that would be revolting even for me). I know what your thinking salt is really bad for you but not me well not for now anyway I assure you the doctors said its perfectly fine.
Music: I love music of all kinds but especially, Ella Henderson, Ed Sheeran, Emeli Sande, The scripts, Taylor Swift and lots more
TV: I just finished watching a series called Mr Strange and Mr Norrell which was a bit odd but some how addictive. I love New Girl because its easy to watch, funny and doesn't matter if you don't watch them in order. I also Enjoy X Factor and Hollyoaks.
Films: Harry Potter, Divergent Series, Hunger Games, Mrs Doubt Fire, Hook, Pitch Perfect, The Hobbit, Bridget Jones, Hocus Pocus, Mary Poppins, Matilda, The Book Thief and many more
Music: I love music of all kinds but especially, Ella Henderson, Ed Sheeran, Emeli Sande, The scripts, Taylor Swift and lots more
TV: I just finished watching a series called Mr Strange and Mr Norrell which was a bit odd but some how addictive. I love New Girl because its easy to watch, funny and doesn't matter if you don't watch them in order. I also Enjoy X Factor and Hollyoaks.
Films: Harry Potter, Divergent Series, Hunger Games, Mrs Doubt Fire, Hook, Pitch Perfect, The Hobbit, Bridget Jones, Hocus Pocus, Mary Poppins, Matilda, The Book Thief and many more
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